~ the blogs ~
I know how difficult it can be to wade through a lot of personal information when all you need in the moment is a little, or a lot, of help & direction. Especially in the midst of pain & a serious case of brain-fog.
Then, there are days when what you really need is to feel connected, so that you're less alone in what you're experiencing.
O, upon thinking about it, I decided to divide my content into two separate blogs.
If all goes as planned, "Lyme & Co." will be devoted to documenting the symptoms that I experience, the treatments I am interested in and the treatments that I receive as I navigate the world of Lyme Disease & Co.
"Living the Life" is a place for me to share the experience of living with chronic illness from an inner experience point of reference ~ how does it affect the emotional, spiritual, mental and relational aspects of living? I may also venture into other territory... we'll see how it goes!
This is very new for me. It isn't like anything I've previously attempted... I find myself here, sitting, buttocks half numb, eyes begging for emancipation from the tyranny of the screen, wondering if I'm really going be able to write. I used to have a passing thought, in days of greater luxury, "If I had a blog, what would I want to say? What would be important enough to me to justify all the effort needed & exposure that I'd experience?".
Well, the days when the world of blogging merely flit through my mind have come to a close. Not that I now feel confident in my content, nor do I feel comfortable with the exposure. It's simply that the questions have changed for me. And I can no longer ignore them.
In recent years I've been asking myself questions like, "How do I survive this illness? How do I reach out when I can't get out? What can I do to help others who are surely in the same predicament?" The answer, simply put, is that I need to blog. It sounds funny to me but it's true.
I need this to not only survive Lyme, but to somehow gain some advantage in it; to use it as a way to reach out in a time of such isolation; to use my experiences and what I've learned to somehow make a positive difference in the lives of others. There is also a gnawing deep inside me... surely from staying silent in the midst of this great shadow that I fight back most moments of every day. I need to so that I can let go of the build up of soot and grim that I've kept shut in for years. My gut is telling me that these experiences I've had are meant to be released, to be shared... to be connected with. I need something more if I'm to continue facing this challenge.
When my symptoms multiplied and expanded beyond what I thought possible, I was so afraid. I had no idea what was happening in my body and my doctor was, to say the least, dismissive. For the most part, I felt terribly alone in my moment to moment struggles and felt very misunderstood.
My desire is that these blogs may be a point of connection and community; to be a safe place for those who feel scared and alone. Hopefully, they can bring a bit of illumination to those without Lyme Disease, be a guide for loved ones wanting to help, serve as a resource to help others find the way through their healing maze and double as my very own health record.
I intend to be brutally honest about what I have gone through and what I'm currently experiencing. Don't get me wrong, I want this to be a positive place for others to visit. However, I believe that deep healing and connection can only come when we bring our authentic selves. I won't be sugar-coating anything but rather I'm choosing to hold out my life and my heart to be connected with.
My goal is to post at least once per week, but there may be times when that won't be a possibility. There may be days, weeks or months, when the energy and the brain power are nowhere to be found. Those are the times when I will rely on some of the great blogs I've discovered along the way to help get me through.
Ps. I considered calling this blog:
"Oh Blimey... I've Got Lymey".
Wrong feel? Quite certainly.
Then, there are days when what you really need is to feel connected, so that you're less alone in what you're experiencing.
O, upon thinking about it, I decided to divide my content into two separate blogs.
If all goes as planned, "Lyme & Co." will be devoted to documenting the symptoms that I experience, the treatments I am interested in and the treatments that I receive as I navigate the world of Lyme Disease & Co.
"Living the Life" is a place for me to share the experience of living with chronic illness from an inner experience point of reference ~ how does it affect the emotional, spiritual, mental and relational aspects of living? I may also venture into other territory... we'll see how it goes!
This is very new for me. It isn't like anything I've previously attempted... I find myself here, sitting, buttocks half numb, eyes begging for emancipation from the tyranny of the screen, wondering if I'm really going be able to write. I used to have a passing thought, in days of greater luxury, "If I had a blog, what would I want to say? What would be important enough to me to justify all the effort needed & exposure that I'd experience?".
Well, the days when the world of blogging merely flit through my mind have come to a close. Not that I now feel confident in my content, nor do I feel comfortable with the exposure. It's simply that the questions have changed for me. And I can no longer ignore them.
In recent years I've been asking myself questions like, "How do I survive this illness? How do I reach out when I can't get out? What can I do to help others who are surely in the same predicament?" The answer, simply put, is that I need to blog. It sounds funny to me but it's true.
I need this to not only survive Lyme, but to somehow gain some advantage in it; to use it as a way to reach out in a time of such isolation; to use my experiences and what I've learned to somehow make a positive difference in the lives of others. There is also a gnawing deep inside me... surely from staying silent in the midst of this great shadow that I fight back most moments of every day. I need to so that I can let go of the build up of soot and grim that I've kept shut in for years. My gut is telling me that these experiences I've had are meant to be released, to be shared... to be connected with. I need something more if I'm to continue facing this challenge.
When my symptoms multiplied and expanded beyond what I thought possible, I was so afraid. I had no idea what was happening in my body and my doctor was, to say the least, dismissive. For the most part, I felt terribly alone in my moment to moment struggles and felt very misunderstood.
My desire is that these blogs may be a point of connection and community; to be a safe place for those who feel scared and alone. Hopefully, they can bring a bit of illumination to those without Lyme Disease, be a guide for loved ones wanting to help, serve as a resource to help others find the way through their healing maze and double as my very own health record.
I intend to be brutally honest about what I have gone through and what I'm currently experiencing. Don't get me wrong, I want this to be a positive place for others to visit. However, I believe that deep healing and connection can only come when we bring our authentic selves. I won't be sugar-coating anything but rather I'm choosing to hold out my life and my heart to be connected with.
My goal is to post at least once per week, but there may be times when that won't be a possibility. There may be days, weeks or months, when the energy and the brain power are nowhere to be found. Those are the times when I will rely on some of the great blogs I've discovered along the way to help get me through.
Ps. I considered calling this blog:
"Oh Blimey... I've Got Lymey".
Wrong feel? Quite certainly.